Family Reports
- Year One Book of Quotes (2000)
- A Profile of Adolescents and Adults with Autism Spectrum Disorders (2001)
- Reflections from Adult Siblings who have a Brother or Sister with an Autism Spectrum Disorder (2002)
- Recommended Resources from Families of Adolescents and Adults with an Autism Spectrum Disorder (2002)
- Family Accommodations – A Study of Family Caregiving (2003)
- Reflections from Adolescent Siblings Who Have Brother or Sister with an Autism Spectrum Disorder (2004)
- Health-Related Needs for Adolescents and Adults with Autism and Their Parents (2005)
- An Inside Perspective from Adolescents and Adults with an Autism Spectrum Disorder (2006)
- Study Update (2007)
- A Profile of Adolescent and Adult Siblings (2007)
- Daily Experiences and Biological Markers of Stress in Mothers of Adolescents and Adults with Autism Spectrum Disorders (2008)
- Changes in Medication Use over Time in Adolescents and Adults with Autism Spectrum Disorders (2009)
- The Transition Out of High School and Into Adult Life for Young Adults with Autism Spectrum Disorders (2010)
- Transitioning Together: Developing an Education and Support Program for Families (2011)
- Quality of Life of Adolescents and Adults with an Autism Spectrum Disorder (2012)
- Characterizing Quality of Life in Adults with Autism Spectrum Disorder (2016)
- Transitioning Together: An Update on an Education and Support Program for Families of Adolescents with ASD (2018)
- Language Outcomes in Adults with Autism Spectrum Disorder (2020)
- Impact of The Great Recession on Autistic Adults and their Mothers (2023)
- Overview of the Study and Shared Experiences from Mothers (2009)
- Daily Experiences and Biological Markers of Stress in Mothers of Adolescents and Adults with Fragile X Syndrome (2010)
- Daily Health Symptoms and Emotional Well-Being of Mothers Who Have a Child with Fragile X Syndrome (2011)
- Study on Family Adaptation to Fragile X Syndrome (2015)
- Social Activities and Friendships of Adolescents and Adults with Fragile X Syndrome (2017)
- Health and Vocational Activities of People with Fragile X Syndrome in Adulthood (2019)
- Identifying the Health Needs of Individuals with FXS Across the Lifespan (2022)
- Experiences of Premutation Mothers and their Siblings (2026)
- Summary of Year 1 Findings (1989)
- A Book of Quotes from Families (1992)
- Siblings Speak Out (1993)
- A Book of Quotes from Fathers (1995)
- Unanticipated Lives: Aging Families of Adults with Mental Retardation: The Impact of Lifelong Caregiving (2000)
- Unanticipated Lives: An Update On New Study Findings (2007)