Advancement of knowledge about families who have a member with an intellectual and developmental disabilities
Adolescents and Adults with Autism
Prior to 2000, there was virtually no systematic research about families of adolescents and adults with an autism spectrum disorder (ASD), about the transition from adolescence to adulthood, about the experiences of individuals with an ASD, or the impact on the family. These are the questions that motivated our research.
In 2000, with funding from the National Institute on Aging, we began our longitudinal study of over 400 families of people with an autism spectrum disorder who live in Wisconsin or Massachusetts. This research has extended for 22 years, and has resulted in over 80 research publications focused on the life course of both the family members and the individual with ASD. We use epidemiological methods, biomarkers, and genetics, as well as social and psychological approaches. To date this study is the largest longitudinal study of ASD in adulthood and has led to the development of intervention studies focused on families and adolescents (Transitioning Together) and adults (Working Together) with ASD.
Kong, J., Mailick, M.R., Almeida, D., Hong, J., Song, J. & Dembo, R. (2025). Daily stress and cortisol patterns in midlife and older parents of children with developmental disabilities. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences. gbaf067, https://doi.org/10.1093/geronb/gbaf067
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Zaidman-Zait A, Almeida DM, DaWalt LS, Dembo RS, Hong J, Mailick MR. The network structure of daily stress process components: Comparing mothers of children with and without developmental disabilities. Development and Psychopathology. Published online 2026:1-13. doi:10.1017/S095457942610162X
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Hong, J., DaWalt, L.S., Klusek, J., Berry-Kravis, E.M., & Mailick, M.R. (2026). Interaction of FXTAS
family history and college degree attainment predicts trajectories of cognitive and motor symptoms in
FMR1 premutation carrier women. American Journal of Medical Genetics – Part B. Neuropsychiatric
Genetics1–13. https://doi.org/10.1002/ajmg.b.70022.
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Hong J, DaWalt LS, Klusek J, Berry-Kravis, E., & Mailick, M.R. (2026). Women with the FMR1
premutation: a within-family observational sibling study. BMJ Connections Clinical Genetics and
Genomics:e000077. doi:10.1136/ bmjccgg-2026-000077
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Hickey, E., DaWalt, L.S., Szidon, K., Taylor, J.L., & Mailick, M.R. (2026). Career patterns of adults
with autism through late midlife. Research in Autism, 133 202909.
View publication via DOI: https://doi.org/10.1016/j.reia.2026.202909
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Klusek, J., Gierman, J., Fairchild, A.J., Benitez, A.M., Berry-Kravis, E., & Mailick, M.R. (2026).
Cognitive dysfunction in women with the FMR1 premutation during midlife: The LASSI-L reveals
curvilinear CGG-dependent risk buffered by college education. Journal of Alzheimer’s Disease, Vol 110,
Issue 1. View publication via DOI: doi/10.1177/13872877251414950
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Movaghar, A., Smith DaWalt, L., Brilliant, M., Kho, A., Magana, S., Berry-Kravis, E. M., & Mailick, M. R.
(2026). Fragile X Syndrome in Adulthood: A Study of Electronic Health Records. American Journal on
Intellectual and Developmental Disabilities, 131(1), 53–68. https://doi.org/10.1080/19447515.2025.2583715
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Hong, J., Mailick, M. R., Almeida, D. M., Hong, J., Song, J., & Dembo, R. S.(2025). Daily stress and cortisol
patterns in midlife and older parents of children with developmental disabilities. Journals of Gerontology.
Series B, Psychological Sciences and Social Sciences, 80(6), Article gbaf067. DOI:10.1093/geronb/gbaf067
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DaWalt, L. S., Hong, J., Gaspar, C. R., Woodman, A., Berry-Kravis, E. M., & Mailick, M. R. (2025). FMR1
Premutation Carrier Mothers' Daily Negative Affect and Cortisol: Probing the Impacts of Stress Exposure,
Coping Style, and CGG Repeats. American journal on intellectual and developmental disabilities, 130(6),
512–531. https://doi.org/10.1352/1944-7558-130.6.512
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25/02/2005
Dembo, R. S., Hong, J., DaWalt, L. S., & Mailick, M. R. (2025). Age-related trajectories of health and cognition
in mothers of children with developmental disabilities: Longitudinal findings from two independent studies.
Social Science & Medicine (2025), 372, 117912. https://doi.org/10.1016/j.socscimed.2025.117912
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Taylor, J. L., Carlson, S. R., DaWalt, L. S., Burke, M. M., Herbert, G. A., & Mailick, M. R. (2025). The Vocational
and Educational Index: An Update to the Vocational Index to Reflect Contemporary Postsecondary Educational
Options for Autistic Adults. Journal of autism and developmental disorders, 10.1007/s10803-025-06737-8.
Advance online publication. https://doi.org/10.1007/s10803-025-06737-8
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Mailick, M., Bennett, T., DaWalt, L. S., Durkin, M. S., Forbes, G., Howlin, P., Lord, C., Zaidman-Zait, A.,
Zwaigenbaum, L., Bal, V., Bishop, S., Chiang, C. H., DiMartino, A., Freitag, C. M., Georgiades, S., Hollocks, M.,
Lai, M. C., Maenner, M. J., Powell, P. S., Taylor, J. L., … Halladay, A. (2025). Expanding research on contextual
factors in autism research: What took us so long?. Autism Research, 10.1002/aur.3312. Advance online
publication. https://doi.org/10.1002/aur.3312
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Hickey, E. J., Smith DaWalt, L., Hong, J., Lounds Taylor, J., & Mailick, M. R. (2024). Trajectories of
Competitive Employment of Autistic Adults. Healthcare, 12(2), 265. doi: 10.3390/healthcare12020265.
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Hickey, E. J., DaWalt, L. S., Bolt, D., Hong, J., Song, J., Lounds Taylor, J., & Mailick, M. R. (2024). Impact of the Great
Recession on Adults With Autism and Their Mothers. American Journal on Intellectual and Developmental Disabilities, 129(1), 26-40. doi: 10.1352/1944-7558-129.1.26.
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Hong, J., DaWalt, L. S., Taylor, J. L., Haider, A., & Mailick, M. (2023). Autism through midlife:
trajectories of symptoms, behavioral functioning, and health. Journal of neurodevelopmental disorders, 15(1), 36. https://doi.org/10.1186/s11689-023-09505-w
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Tassone, F., Protic, D., Allen, E.G., Archibald, A.D., Baud, A., Brown, T.W., Budimirovic, D.B., Cohen, J., Dufour, B., Eiges, R., … Mailick, M.R.… et al. (2023). Insight and
recommendations for Fragile X-Premutation-Associated conditions from the 5th
International Conference on FMR1 premutation. Cells. 12, 2330. https://doi.org/10.3390/cells12182330
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Hong J, Dembo RS, DaWalt LS, Baker MW, Berry-Kravis E, Mailick MR. Mortality in Women across the FMR1 CGG
Repeat Range: The Neuroprotective Effect of Higher Education. Cells. 2023; 12(17):2137. https://doi.org/10.3390/cells12172137
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Dembo, R. S., Hong, J., DaWalt, L. S., Berry-Kravis, E. M., & Mailick, M. R. (2023). Health Effects of Sleep Quality in
Premutation Carrier Mothers of Individuals With Fragile X Syndrome. American journal on Intellectual and Developmental Disabilities, 128(3), 254–268. https://doi.org/10.1352/1944-7558-128.3.254
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Dembo, R. S., Mailick, M. R., Rudolph, A. E., Huntington, N., DaWalt, L. S., & Mitra, M. (2023). Social network diversity
and mental health among mothers of individuals with autism. American journal on intellectual and developmental disabilities, 128(2), 101–118. https://doi.org/10.1352/1944-7558-128.2.101
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Song, J., Dembo, R. S., Smith DaWalt, L., Ryff, C. D., & Mailick, M. R. (2023). Improving retention of
diverse samples in longitudinal research on developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 128(2), 164–175. https://doi.org/10.1352/1944-7558-128.2.164
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Maltman, N., DaWalt, L. S., Hong, J., Baker, M. W., Berry-Kravis, E. M., Brilliant, M. H., & Mailick, M. (2023). FMR1 CGG repeats and stress
influence self-reported cognitive functioning in mothers. American Journal on Intellectual and Developmental Disabilities, 128(1), 1–20. https://doi.org/10.1352/1944-7558-128.1.1
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Hong, J., Dembo, R. S., DaWalt, L. S., Brilliant, M., Berry-Kravis, E. M., & Mailick, M. (2022). The effect of college
degree attainment on neurodegenerative symptoms in genetically at-risk women. SSM – Population Health, 101262. https://doi.org/10.1016/j.ssmph.2022.101262
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Movaghar, A., Page, D., Brilliant, M., & Mailick, M. (2022). Advancing artificial
intelligence-assisted pre-screening for fragile X syndrome. BMC Medical Informatics and Decision Making, 22(1), 152. https://doi.org/10.1186/s12911-022-01896-5.
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Lorang, E., Hong, J., Song, J., DaWalt, L. S., & Mailick, M. (2022). Verbal ability, behavior
problems, and mother-child relationship quality in autism spectrum disorder. Journal of Autism and Developmental Disorders, 52, 2463-2478.
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Kucharczyk, S., Szidon, K., & Hall, L. J. (2022). Coaching in complexity:
Lessons learned investigating implementation of interventions in high schools. Career Development and Transition for Exceptional Individuals, 45, 99-113. DOI: 10.1177/21651434211041909
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Lorang, E., Hong, J., DaWalt, L. S., & Mailick, M. (2022). Change in maladaptive
behavior affects intergenerational relationships in FXS. American Journal on Intellectual and Developmental Disabilities, 127, 231-248.
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Kuhn, J., Szidon, K., Kraemer. B., Steinbrenner, J.D., Tomaszewski, B., Hume, K., & DaWalt, L. (2022). Implementation of a
multi-family autism transition program in the high school setting. Autism,26, 615-627. doi: 10.1177/13623613211065533
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Kraemer, B., Tomaszewski, B., Rentschler, L. F, Steinbrenner, J. D., Hume, K. A.,McDaniel, S., DaWalt, L. S., Brum, C., & Szidon, K. (2022). Quality of the transition component of
the IEP for high school students with autism. Career Development and Transition for Exceptional Individuals. First published online https://doi.org/10.1177/21651434221079743
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Maltman, N., Klusek, J., DaWalt, L., Hong, J., Sterling, A., Berry-Kravis, E., & Mailick, M. R. (2022). Verbal inhibition
declines among older women with high FMR1 premutation expansions: A
prospective study. Brain and Cognition, 159, 105851. https://doi.org/10.1016/j.bandc.2022.105851
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Hume, K., Odom, S., Steinbrenner, J., DaWalt, L., Hall, L., Kraemer, B., Tomaszewski, B., Brum, C., Szidon, K., & Bolt, D. (2022). Efficacy of a
school-based comprehensive intervention program for adolescents with autism. Exceptional Children, 88, 223-240. DOI: 10.1177/00144029211062589
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Klusek, J., Fairchild, A., Moser, C., Mailick, M. R., Thurman, A. J., & Abbeduto, L. (2022). Family history of FXTAS
is associated with age-related cognitive-linguistic decline among mothers with
the FMR1 premutation. Journal of Neurodevelopmental Disorders, 14(1), 7. https://doi.org/10.1186/s11689-022-09415-3
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Movaghar, A., Page, D., Brilliant, M.H., & Mailick, M.R. (2021). Prevalence of
underdiagnosed fragile X syndrome in two health systems. JAMA Open Network, 4(12): e2141516.doi:10.1001 /jamanetworkopen.2021.41516
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Dembo, R. S., Huntington, N., Mitra, M., Rudolph, A. E., Lachman, M. E., & Mailick, M. R. (2022). Social network typology
and health among parents of children with developmental disabilities: Results
from a national study of midlife adults. Social Science & Medicine, 292, 114623. https://doi.org/10.1016/j.socscimed.2021.114623
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Movaghar, A., Page, D., Brilliant, M., & Mailick, M. (2021). “Response to Timothé
Ménard”. Genetics in Medicine, 24(3), 752–753. https://doi.org/10.1016/j.gim.2021.10.023
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DaWalt, L. S., Hickey, E., Hudock, R., Esler, A., & Mailick, M. (2021). Impact of Working
Together for adults with autism spectrum disorder: A multifamily group
intervention. Journal of Neurodevelopmental Disorders, 13, 44. https://doi.org/10.1186/s11689-021-09395-w
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Hong J, DaWalt L, Baker MW, Berry-Kravis EM and Mailick MR (2021) Is FMR1 CGG
repeat number polymorphism associated with phenotypic variation in the general
population? Report from a cohort of 5,499 adults?. Frontiers in Psychiatry 12:727085. doi: 10.3389/fpsyt.2021.727085
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Fletcher, J. M., Greenberg, J. S., Mailick, M. R., Song, J., & Wolfe, B. (2021). Educational attainments
of children with adopted siblings. Journal of Family Issues. 42(11), 2625–2647. https://doi.org/10.1177/0192513X20984495
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DaWalt, L. S., Taylor, J. L., Movaghar, A., Hong, J., Kim, B., Brilliant, M., & Mailick, M. R. (2021). Health profiles of
adults with autism spectrum disorder: Differences between women and men. Autism Research, 14(9), 1896–1904. https://doi.org/10.1002/aur.2563
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Hong J, Kapoor A, DaWalt LS, Maltman N, Kim B, Berry-Kravis EM, Almeida D, Coe C, Mailick M. (2021). Stress and genetics
influence hair cortisol in FMR1 premutation carrier mothers of children
with fragile X syndrome. Psychoneuroendocrinology, 129:105266. doi: 10.1016/j.psyneuen.2021.105266. Epub 2021 May 13. PMID: 34020265; PMCID: PMC8217368.
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Mailick MR, Hong J, Movaghar A, DaWalt L, Berry-Kravis EM, Brilliant MH, Boero J, Todd PK, Hall D. (2021). Mild neurological signs
in FMR1 premutation women in an unselected community-based cohort. Movement Disorders. DOI: 10.1002/mds.28683
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Movaghar A, Page D, Scholze D, Hong J, DaWalt LS, Kuusisto F, Stewart R, Brilliant M, Mailick M. (2021). Artificial
intelligence-assisted phenotype discovery of fragile X syndrome in a
population-based sample. Genetics in Medicine. DOI: 10.1038/s41436-021-01144-7 -01144-7.
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Song, J., Radler, B. T., Lachman, M. E., Mailick, M. R., Si, Y., & Ryff, C. D. (2021). Who returns?
Understanding varieties of longitudinal participation in MIDUS. Journal of Aging and Health. doi:10.1177/08982643211018552.
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Greenberg J, Hilton EC, Li JJ, Lu Q, Mailick MR. (2021). The impact of parenting
a child with serious mental illness: Accounting for the parent’s genetic
vulnerability to mental illness. Journal of Family Psychology, 35(3):417-422. doi: 10.1037/fam0000783. Epub 2020 Jul 16. PMID: 32673031; PMCID: PMC8331066.
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Sloan CJ, Mailick MR, Hong J, Ha JH, Greenberg JS, Almeida DM. (2020). Longitudinal changes in
well-being of parents of individuals with developmental or mental health
problems. Social Science and Medicine, 264:113309. doi: 10.1016/j.socscimed.2020.113309. Epub 2020 Aug 21. PMID: 32858491; PMCID: PMC7441882.
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Maltman, N., DaWalt, L.S., Hong, J., & Mailick, M.R. (2020). Socioeconomic factors
associated with minimally verbal status in individuals with ASD. Journal of Autism and Developmental Disorders, 51(6), 2139–2145. https://doi.org/10.1007/s10803-020-04646-6.
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Usher LV, DaWalt LS, Hong J, Greenberg JS, Mailick MR. (2020). Trajectories of change
in the behavioral and health phenotype of adolescents and adults with fragile X
syndrome and intellectual disability: Longitudinal trends over a decade. Journal of Autism and Developmental Disorders, 50(8):2779-2792. doi: 10.1007/s10803-020-04367-w. PMID: 32040800; PMCID: PMC7377950.
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Mailick, M. R., Hong, J., DaWalt, L. S., Greenberg, J. S., Movaghar, A., Baker, M. W., Rathouz, P. J., & Brilliant, M. H. (2020). FMR1 low zone CGG repeats:
Phenotypic associations in the context of parenting stress. Frontiers in pediatrics, 8, 223. https://doi.org/10.3389/fped.2020.00223
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Song, J., Mailick, M. R., & Greenberg, J. S. (2020). Apolipoprotein ɛ4 allele
and subjective cognitive functioning in parents of adults with disabilities. The Journal of Gerontology, Series B: Psychological Sciences and Social Sciences, 75(8):e189-e197. doi: 10.1093/geronb/gbaa061.
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Klusek, J., Hong, J., Sterling, A., Berry-Kravis E, & Mailick, M. R. (2020). Inhibition deficits are
modulated by age and CGG repeat length in carriers of the FMR1
premutation allele who are mothers of children with fragile X syndrome. Brain and Cognition, 139, 105511. https://doi.org/10.1016/j.bandc.2019.105511
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DaWalt, L. S., Hong, J., Greenberg, J. S., & Mailick, M. R. (2019). Mortality in individuals
with autism spectrum disorder: Predictors over a 20-year period. Autism, 23(7):1732-1739. doi:10.1177/1362361319827412.
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Song, J., Mailick, M. R., Greenberg, J. S., & Hong, J. (2018). The lifelong health effects of parenting a child with a developmental disability or a mental health problem. In C. D. Ryff, & R. Krueger (Eds.), Oxford Handbook of Integrative Health Science. (pp.143-154). New York, NY: Oxford University Press. doi:10.1093/oxfordhb/9780190676384.013.9
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Tomaszewski, B., DaWalt, L. S., & Odom, S. L. (2019). Growth mixture models of
adaptive behavior in adolescents with autism spectrum disorder. Autism, 23(6), 1472-1484. PMID: 30525941, doi: 10.1177/1362361318815645.
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Hartley, S. L., DaWalt, L., Hong, J., Greenberg, J., & Mailick, M. R. (2019). Positive emotional
support in premutation carrier mothers of adolescents and adults with fragile X
syndrome: Gene by environment interactions. American Journal of Intellectual and Developmental Disabilities, 124(5):411-426. doi: 10.1352/1944-7558-124.5.411.
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Movaghar A, Page D, Brilliant M, Baker MW, Greenberg J, Hong J, DaWalt LS, Saha K, Kuusisto F, Stewart R, Berry-Kravis E, Mailick MR. (2019). Data-driven phenotype
discovery of FMR1 premutation carriers in a population-based sample. Science Advances, 21;5(8):eaaw7195. doi: 10.1126/sciadv.aaw7195.
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midlife occupational attainment and psychological functioning in adults with
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Orsmond, G. I., Kuo, H. Y., & Seltzer, M. M. (2009). Siblings of individuals
with an autism spectrum disorder: Sibling relationships and wellbeing in
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Seltzer, M. M., Greenberg, J. S., Orsmond, G. I., Lounds, J., & Smith, M. J. (2008). Unanticipated lives: Inter- and intra-generational relationships in families with children with disabilities. In A. Booth, A. Crouter, A. C. Bianchi, & , J. A. Seltzer. (Eds.), Intergenerational caregiving (pp. 233-241). Washington, DC: Urban Institute Press.
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Esbensen, A. J., Seltzer, M. M., & Krauss, M. W. (2008). Stability and change in
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without Down syndrome. American Journal on Mental Retardation, 113(4), 263-277. PMID: 18564887, doi:10.1352/0895-8017(2008)113[263:SACIHF]2.0.CO;2.
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Kring, S. R., Greenberg, J. S., & Seltzer, M. M. (2008). Adolescents and adults
with autism with and without co-morbid psychiatric disorders: Differences in
maternal well-being. Journal of Mental Health Research in Intellectual Disabilities, 1(2), 53-74. PMID: 20556237, doi:10.1080/19315860801988228.
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Ha, J., Hong, J., Seltzer, M.M., & Greenberg, J.S. (2008). Age and gender
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mental health or developmental problems: Report of a national study. Journal of Health and Social Behavior, 49(3), 301-16. doi:10.1177/002214650804900305.
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Smith, L. E., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2008). A comparative analysis
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Rogers, C.H., Floyd, F.J., Seltzer, M.M., Greenberg, J., & Hong, J. (2008). Long term effects of the
death of a child on parents’ adjustment in midlife. Journal of Family Psychology, 22(2), 203-11. doi:10.1037/0893-3200.22.2.203.
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Smith, L. E., Greenberg, J. S., Seltzer, M. M., & Hong, J. (2008). Symptoms and behavior
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Taylor, J.L., Greenberg, J.S., Seltzer, M.M., & Floyd, F. (2008). Siblings of adults with
mild intellectual deficits or mental illness: Differential life course outcomes. Journal of Family Psychology,22(6), 905-14. doi:10.1037/a0012603.
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Lounds, J., Seltzer, M. M., Greenberg, J. S., & Shattuck, P. T. (2007). Transition and change in adolescents and
young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation, 112(6), 401-417. PMID: 17963433, doi:10.1352/0895-8017(2007)112[401:TACIAA]2.0.CO;2.
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Smith, M. J., Greenberg, J. S., & Seltzer, M. M. (2007). Siblings of adults with
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Effects on adult lives. Journal of Intellectual Disability Research, 51(9), 682-696. PMID: 17845237, doi:10.1111/j.1365-2788.2007.00954.x.
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Esbensen, A. J., Seltzer, M. M., & Greenberg, J. S. (2006). Depressive symptoms in
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Li, L. W., & Seltzer, M. M. (2005). Relationship quality with parent, daughter role salience, and self-esteem of daughter caregivers. Marriage & Family Review, 37(1-2), 63-82. PMID:15634320, doi:10.1300/J002v37n01_06.
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non‐family settings: Positive and negative aspects of residential status. Journal of Intellectual Disability Research, 49(2), 111-124. PMID: 15634320, doi:10.1111/j.1365-2788.2004.00599.x.
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Li, L. W., Seltzer, M. M., & Greenberg, J. S. (1997). Social support and depressive symptoms:
Differential patterns in wife and daughter caregivers. Journal of Gerontology: Social Sciences (pp. S200-S211). Washington, D.C.: The Gerontological Society of America. Reprinted in C. S. Aneshensel (Ed.). (2001). Theory-based data analysis for the social sciences. Thousand Oaks, CA: Pine Forge Press.
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Krauss, M. W. & Seltzer, M. M. (1997). Life course perspectives on mental retardation research: The case of family caregiving. In J. A. Burack, R. M. Hodapp, & E. Zigler (Eds.), Handbook of mental retardation and development (pp. 504-520). New York, NY: Cambridge University Press.
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Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1997). Residential transitions of adults with mental
retardation: Predictors of waiting list use and placement. American Journal of Mental Retardation: AJMR, 101(6), 613-629. PMID:9152476.
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Seltzer, M. M., Greenberg, J. S., Krauss, M. W., Gordon, R. M., & Judge, K. (1997). Siblings of adults with
mental retardation or mental illness: Effects on lifestyle and psychological
well-being. Family Relations, 395-405.
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Seltzer, M. M., Greenberg, J. S., Krauss, M. W., & Hong, J. (1997). Predictors and outcomes of the end of
co-resident caregiving in aging families of adults with mental retardation or
mental illness. Family Relations, 13-22. doi:10.2307/585602.
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Gordon, R. M., Seltzer, M. M., & Krauss, M. W. (1997). The aftermath of
parental death: Changes in the context and quality of life. In R. L. Schalock (Ed.), Quality of life: Its application to persons with disabilities (pp. 25-42). Washington, DC: American Association on Mental Retardation.
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Seltzer, M. M., & Heller, T. (1997). Introduction: Families and caregiving across the life course: Research advances on the influence of context. Family Relations, 321-323.
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Seltzer, M. M., Krauss, M. W., Choi, S. C., Hong, J. (1996). Midlife and later life parenting of adult children with mental retardation. In C. D. Ryff & M. M. Seltzer (Eds.), The parental experience in midlife. (pp. 459 – 493). Chicago, IL: University of Chicago Press.
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Krauss, M. W., Seltzer, M. M., Gordon, R., & Friedman, D. H. (1996). Binding ties: The roles of adult siblings of
persons with mental retardation. Mental Retardation, 34(2), 83. PMID: 8935888.
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Seltzer, M. M., & Li, L. W. (1996). The transitions of
caregiving: Subjective and objective definitions. The Gerontologist, 36(5), 614-626. PMID: 8942105, doi:10.1093/geront/36.5.614.
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Hong, J., & Seltzer, M. M. (1995). The psychological
consequences of multiple roles: the nonnormative case. Journal of Health and Social Behavior, 36(4), 386–398. PMID: 8719056.
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Krauss, M. W., & Seltzer, M. M. (1995). Long-term caring: Family experience over the life course. In D. Rosenthal & L. Nadel (Eds.), Down syndrome: Living and learning in the community. (pp. 91-98). New York, NY: Wiley.
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Seltzer, M. M., Greenberg, J. S., & Krauss, M. W. (1995). A comparison of coping strategies of aging
mothers of adults with mental illness or mental retardation. Psychology and Aging, 10(1), 64. PMID:7779318, doi:10.1037/0882-7974.10.1.64.
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Seltzer, M. M., Krauss, M. W., Walsh, P., Conliffe, C., Larson, B., Birkbeck, G., Hong, J., & Cchoi, S. (1995). Cross‐national
comparisons of ageing mothers of adults with intellectual disabilities. Journal of Intellectual Disability Research, 39(5), 408-418. PMID:8555717, doi:10.1111/j.1365-2788.1995.tb00545.x.
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Krauss, M. W., & Seltzer, M. M. (1994). Taking stock: Expected gains from a lifespan perspective on mental retardation. In M. M. Seltzer, M. W. Krauss, & M. P. Janicki (Eds.), Life course perspectives on adulthood and old age (pp. 213-220). Washington, DC: American Association on Mental Retardation.
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Seltzer, M. M., & Krauss, M. W. (1994). Aging parents with co-resident adult children: The impact of lifelong caregiving. In M. M. Seltzer, M. W. Krauss, & M. P. Janicki (Eds.), Life course perspectives on adulthood and old age (pp. 3-18). Washington, DC: American Association on Mental Retardation.
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Seltzer, M. M., & Ryff, C. D. (1994). Parenting across the lifespan: The normative and nonnormative cases. In D. L. Featherman, R. Lerner, & M. Perlmutter (Eds.), Life-span development and behavior (pp. 1-40). Hillsdale, NJ: Lawrence Erlbaum.
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Krauss, M. W., & Seltzer, M. M. (1993). Coping strategies among older mothers of adults with retardation: A life span developmental perspective. In A. P. Turnbull, J. M. Patterson, S. K. Behr, D. L. Murphy, J. G. Marquis, & M. J. Blue-Banning (Eds.), Cognitive coping, families, and disability. Baltimore, MD: Paul H. Brookes.
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Seltzer, M. M., & Krauss, M. W. (1993). Adult sibling relationships of persons with mental retardation. In Z. Stoneman & P. Berman (Eds.), The effects of mental retardation, disability and illness on sibling relationships: Research issues and challenges. Baltimore, MD: Paul H. Brookes.
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Greenberg, J. S., Seltzer, M. M., & Greenley, J. R. (1993). Aging parents of adults with disabilities:
The gratifications and frustrations of later life caregiving. The Gerontologist, 33(4), 542-550. PMID:8375685, doi:10.1093/geront/33.4.542.
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Krauss, M. W., & Seltzer, M. M. (1993). Current well-being and
future plans of older caregiving mothers. Irish Journal of Psychology, 14, 47-64. doi:10.1080/03033910.1993.10557914.
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Seltzer, M. M., Krauss, M. W., & Tsunematsu, N. (1993). Adults with Down syndrome and their aging
mothers: Diagnostic group differences. American Journal on Mental Retardation, 97(5), 464-508. PMID: 8461121.
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Seltzer, M. M., and Seltzer, G. B. (1992). Aging in persons with developmental disabilities. In F. J. Turner (Ed.), Mental Health and the elderly: A social work perspective. (pp. 136-162). New York, NY: The Free Press.
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Krauss, M. W., Seltzer, M. M., & Goodman, S. J. (1992). Social support networks of adults with
retardation who live at home. American Journal on Mental Retardation, 96(4), 432-441. PMID:1739456.
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Seltzer, M. M. (1992). Family caregiving across the full life span. In L. Rowitz (Ed.), Mental retardation in the year 2000. (pp. 85-100). New York, NY: Springer-Verlag.
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Seltzer, M. M. (1992). Aging in persons with developmental disabilities. In J. E. Birren, R. B. Sloane, & G. D. Cohen (Eds.), Handbook of mental health and aging. (pp. 583-596). New York, NY: Academic Press.
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Seltzer, M. M., Krauss, M. W., & Heller, T. (1991). Family caregiving over the life course. In M. P. Janicki & M. M. Seltzer (Eds.), Aging and developmental disabilities: Challenges for the 1990s. Washington, DC: Special Interest Group on Aging, AAMR.
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Seltzer, G. B., Begun, A., Seltzer, M. M., & Krauss, M. W. (1991). Adults with mental retardation and their
aging mothers: Impacts of siblings. Family Relations, 40, 310-317. doi:10.2307/585017.
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Erickson, M., Krauss, M. W., & Seltzer, M. M. (1989). Perceptions of old age
among a sample of aging mentally retarded persons. Journal of Applied Gerontology, 8, 251-260. doi:10.1177/073346488900800211.
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Janicki, M. P., Krauss, M. W. & Seltzer, M. M. (1988). Agenda for service policy, and research. In M. P. Janicki, M. W. Krauss, & M. M. Seltzer (Eds.), Community residences for persons with developmental disabilities: Here to stay. Baltimore: Paul H. Brookes.
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Janicki, M. P., Krauss, M. W. & Seltzer, M. M. (1988). Context, models, and issues for community residences. In M. P. Janicki, M. W. Krauss, & M. M. Seltzer (Eds.), Community residences for persons with developmental disabilities: Here to stay. Baltimore, MD: Paul H. Brookes.