Advancement of knowledge about families who have a member with an intellectual and developmental disabilities

Aging And Developmental Disabilities

Starting in 1988 we studied 461 families all of whom had an adult son or daughter with intellectual disabilities.  The parents faced atypical and unstudied dual challenge: the continuing caregiving responsibility for an adult child with a disability and the personal challenge of adjusting to the manifestations and consequences of their own aging. The study addressed these issues with the largest exsiting sample in the US of older mothers and fathers  (average age = 66 years in 1988) and their adult sons and daughters with developmental disabilities (average age = 35 years in 1988), about one-third of whom have Down syndrome.

Journal Articles